WATERTOWN, N.Y. (WWNY) - There’s a month-long virtual walk or run to raise money to help people who have a rare genetic disease.
Andrea Carr says her grandson Benson – who she affectionately calls Moose – was diagnosed with cystinosis when he was 18 months old.
She’s organizing a fundraiser she’s calling Miles for Moose.
Watch the video above for her interview on 7 News This Morning.
It’s a 5.7-mile walk or run that people can complete between May 1 and May 31.