‘Miles for Moose’ to raise money to combat rare disease

Updated: Apr. 1, 2021 at 8:55 AM EDT
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WATERTOWN, N.Y. (WWNY) - There’s a month-long virtual walk or run to raise money to help people who have a rare genetic disease.

Andrea Carr says her grandson Benson – who she affectionately calls Moose – was diagnosed with cystinosis when he was 18 months old.

She’s organizing a fundraiser she’s calling Miles for Moose.

Watch the video above for her interview on 7 News This Morning.

It’s a 5.7-mile walk or run that people can complete between May 1 and May 31.

You can register at or on the event’s Facebook page.

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